PCOS: Polycystic Ovarian Syndrome- the hardest Post I have ever wrote.
So guys… Polycystic Ovarian Syndrome.. Some people know nothing others know a lot… The ones that know a lot.. Tend to be the ones with this vile syndrome.
Some words that spring to mind… Infertile, alone, exhausted, odd one out..
Well girls… We’re not the odd ones out and were not alone, there are millions of us going through the same thing!
So here’s my story:
I was diagnosed with PCOS when I was 21, after coming off the pill and having a lump that needed investigating and not having any periods for 12 months, for someone who didn’t know much about this as I never had to think about it! So I was referred to a specialist unit in our local hospital, I had test after test, bloods, internal ultrasounds the works.. And these were weekly!
After several medications including clomiphene , metformin and letrozole were all rendered useless for me. (These drugs help many people get pregnant and make periods return)
I was then told I would have to have an operation called Ovarian Drilling… Note- don’t watch this on YouTube if your having this op! Not pleasant! But I would have done anything to have a baby so I was up for it! But yet again this is another failing for me. At this point I felt like I was broken, useless and infertile. One of the nurses kept saying I was the worst case she had seen in my age, which I would laugh along to but inside it was killing me.
The worse thing about the whole situation is it is a Taboo subject.. No one wants to talk about it, when you say you are having treatment the room goes quiet… I prefer to talk about it, I didn’t want pity looks and people apologising for asking when I would have children , it’s just the way thing go.
As I was starting to give up hope 3 years down the line, during one of my appointments to tell me how badly the latest drug had worked.. Which you knew due to the lack of period.. One thing girls always wish they hadn’t got! (Girls- be thankful!! It’s a pain in the butt, it’s there for a reason! Embrace it!!) I got told that was it.. No other options except IVF- was I excited or was I heartbroken?! I just didn’t know.
Weirdly the next few weeks went by quickly and I found myself nearing the point of IVF…. Which weirdly in my head was a lengthy process and involved a lot! Well it takes about 4 weeks! A lot quicker than I thought and a lot of injecting etc! ( if you want me to do a detailed post on IVF- pop a note in the comments)
Then two weeks… Wait… Wonder… Weird! I spent two weeks lay down- I wasn’t risking a single thing! And I got my positive test at the end of those two weeks!! An amazing pregnancy and now a beauty of a 3 year old!
This was one of the hardest times of my life and so many women out there are waiting so patiently for there baby.. I feel I actually had it easy! So many people out there who have waited years and can’t afford more than one round of IVF, but the day will come girls, don’t give hope, I never thought u would have had a baby let alone my diva of a 3year old that I have now! Any questions let me know I hated not having an open voice to talk to as everyone shut down for fear of upsetting me! PM me or private message if you don’t want to comment, success stories in the comments will also keep us going! Good luck girls xXx
Good on you for speaking up Faye, PCOS is a bitch. Do you still struggle with any symptoms following the infertility issues you had?
Unfortunately I still have symptoms, weight gain around my middle only, endless hairiness, and feeling like I need all the sugar in the world! The tablets to control it are worse symptoms tho 🙁 xx
So sorry you have had to go through such a difficult journey but wow what a great outcome in the end. I wouldn’t confess to knowing much about PCOS but I don’t understand why people wouldn’t talk about it? I had always assumed IVF would take months or years too (again I have no idea why). Your daughter is gorgeous.
Not many people know as people fear talking about it unfortunately 🙁 it’s one of those things that you can’t help, I’m hoping to have IVF again soon and vlog and blog about it to spread the word xx
much love to you x
Thank you xx
I know a little about PCOS as a friend has it. I am so glad you got your baby, I would love to read more about your IVF journey x
Thank you, next year I will be Vlogging and Vlogging about our IVF journey
i have endo & PCOS so fully understand you hun, I’ve yet to speak about my condition on my blog but its on my todo list. just makes it so much more real speaking about it no?
I have always been fairly open about it with people because I find that if you don’t speak about it, the feelings you have make it harder to deal with- but I suppose it’s how everyone deals with it in their own way xxx
I’m so sorry that you had such a hard time but so glad that the IVF worked so well and on the first go. I know so many couples that spend years trying IVF so that is fantastic news. I can understand why Men might find it hard to talk about ‘women’s issues’ but I don’t think women should as you never know if you are going to suffer from a condition. Thanks for joining the #weekendblogshare
It’s sad isn’t it, i have found men to be more understanding! But yes thanks the Lord IVF worked! Xx
As a fellow PCOS sufferer it’s good to talk! So glad you got your little lady and that the IVF worked for you. We’re currently trying for our second baby and 14 months on, my womb is like a bleak barren waste land. Really interested in hearing about your IVF journey and would love to read more
Hi Emma,
dont give up hope, theres always a way! i dont even have periods so my womb is pretty redundant too 🙁 definitely will be adding more soon xx
I didn’t know you had this! I got told I had this when I was 19 and I have had issues ever since. We were VERY lucky with Erin and most of my issues now are with weight gain more than anything.
I didn’t know you did either! My Erin was IVF struggled for years, very lucky to have her. I want more but got to have more ivf and it scares the hell out of me 🙁 x